Tuesday, June 1, 2010

The NFCA is Looking For Stories On Experiences Related to Gluten in Medications

The National Foundation for Celiac Awareness (NFCA) is actively working with the FDA and pharmaceutical industry to address the problem of unlabeled gluten in medication. To help demonstrate this dilemma, NFCA is interested in hearing about specific case experiences that people with celiac disease have had related to their need for oral medication.

There are three areas that that will help illustrate the problem of gluten in medication:
1. Adverse effects resulting from taking a medication that had gluten in it
2. Being unable to take an oral medication in a timely manner because the ingredients were unknown
3. Taking a medication despite not knowing if it was gluten-free

If you have experienced an event related to gluten in medication and would like to share it, please email Loretta Jay at NFCA, lorettajay@celiaccentral.org . Please include the following:

1. Your name, address, phone and email
2. The name of the drug involved
3. A brief description of your experience

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